Parents Rally Support for Baby Arlo’s Treatment Journey

Families often face overwhelming challenges, but few can compare to the journey of Arlo Woodward, a 15-month-old from Whakatāne, New Zealand. After being diagnosed with bilateral perisylvian polymicrogyria earlier this year, Arlo’s parents are committed to securing the best possible treatment for their son. This rare condition, characterized by an excessive number of small folds in the brain, has prompted a significant fundraising effort to cover the costs of private care in Rotorua.

Arlo’s condition involves unique brain abnormalities. An MRI revealed that, in addition to the small folds on both sides of his head, the front of his brain displays a smooth surface. These findings have profound implications for Arlo’s development, impacting his ability to reach critical milestones like walking and talking. His parents, Tamara Holland-Goodwin and Leon Woodward, describe him as the most extraordinary child, and they are determined to provide him with every opportunity for improvement.

To help fund Arlo’s treatment, the family has launched a community fundraising campaign, aimed at gathering support from friends, family, and local residents. The treatment costs are substantial, with private sessions in Rotorua estimated to be around $1,500 NZD per visit, which can add up quickly. As they share Arlo’s story, they hope to raise awareness about his condition and the importance of early intervention.

Community Response and Fundraising Efforts

The response from the Whakatāne community has been heartwarming. Local businesses and residents have stepped up, hosting events and donating items for auctions to support Arlo’s cause. The family’s social media presence has also expanded, with updates on Arlo’s journey capturing the hearts of many.

Tamara expressed her gratitude for the outpouring of support, stating, “We are overwhelmed by the kindness and generosity of our community. Every little bit helps us get closer to providing the treatment Arlo needs.” The family is hopeful that as their story reaches a broader audience, more people will engage in their fundraising initiatives.

As they navigate this challenging time, Tamara and Leon emphasize the importance of community in their journey. They remain optimistic about Arlo’s future, believing that with the right support and treatment, he can achieve significant milestones.

Looking Ahead

The family is set to continue their fundraising efforts over the coming months, with various events planned to enhance their outreach. They aim not only to raise funds but also to educate others about bilateral perisylvian polymicrogyria and the challenges faced by children with similar conditions.

Arlo’s journey is a poignant reminder of the resilience of families facing health challenges. As Tamara and Leon push forward, they embody the unwavering hope that drives many parents in similar situations. With each smile from their son, they are reminded of the strength of community and the power of love in overcoming obstacles.